Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions
نویسندگان
چکیده
منابع مشابه
Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research
The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials. This paper provides an overview of the patient-powered research networks (PPRNs), networks of patient organizations focused on a particular health condition that are inte...
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چکیده ندارد.
Future directions and research needs.
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ژورنال
عنوان ژورنال: The Patient - Patient-Centered Outcomes Research
سال: 2021
ISSN: 1178-1653,1178-1661
DOI: 10.1007/s40271-021-00515-1